Support Organization for Trisomy 18, 13 and Related Disorders

 


St. Louis Gateway Arch

26th Annual International Conference

Meet Me in St. Louis

July 18 through July 22, 2012

Click for more information


Submit Your Photos to the Annual 
Kari Holladay Slide Show

To submit your pictures to get in the video montage
(Slide Presentation) Click Here

Deadline: May 15


Balloon Release Request Form
for Non-Attendees

Joey Watson Fund Application 
deadline May 30


Links to International SOFT Trisomy Groups & Contacts

Links to other trisomy groups and contacts are provided for information only and do not constitute endorsement by SOFT, USA.   Please help SOFT maintain current links. Contact barbsoft@rochester.rr.com to report an inactive link.

Contact for persons from other countries who join SOFT USA
Pam Healey, SOFT USA board member (International committee) Lexington, MA, USA Email: healeylex@aol.com

S.O.F.T. Australia
Rainbows Down Under
Karen Schuler
Kirrawee, NSW, Australia
Phone: 02-9521-6039
E-mail: softaus@optushome.com.au or karens@tig.com.au
Website: http://www.members.optushome.com.au/softaus/

SOFT Canada
Satinder Sahota, SOFT USA board member, Toronto, ON, Canada
Phone: 416-422-1393
Email: satinder@fastmail.fm
Website:  www.trisomy.org

Germany
Trisomie 13-Patau Syndrome
Website: http://www.trisomie13.de
English Translation:  http://66.163.168.225/babelfish/translate_url_content?lp=de_en&url=http%3A%2F%2Fwww.trisomie13.de%2FKinder%2Fkinder.htm&.intl=us

S.O.F.T. Ireland
Support Organization for Trisomy 13/18
Carmel Reilly
Phone: 00-353-21-4293623
Website: www.softireland.com

SOFT Italy
Email: info@softitaly.org
Website: www.softitaly.org

Japan
The Trisomy 18 Support Group (Japan)
Email: questions@18trisomy.com
Website: http://18trisomy.com/

SOFT New Zealand
Perry and Kath Newburn
Wanganui, New Zealand
Email: Perry.newburn@xtra.co.nz

Romania
New- T13 and T18 in Romania
Website: http://farasastieingeri.wordpress.com
English Translation: http://translate.google.com/translate?sl=ro&tl=en&u=http%3A%2F%2Ffarasastieingeri.wordpress.com%2F

SOFT Scotland
Liz Egan
Uddingston, Scotland
Phone: 010698-818380
Email: liz_egan40@yahoo.co.uk

Duncan & Fiona Kerr
Renfrewshire, Scotland
Phone: (1505)614501
Email: duncanmkerr@aol.com

SOFT UK
Support Organization for Trisomy 13/18
David & Christine Rose
West Midlands, England
Phone: 121-351-5728
Website: www.soft.org.uk

 

Donate to Soft

SOFT Auction

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Trisomy 13
$10.95
Trisomy 13 - A Handbook for Families
by Stenson et al 1992 (copyright 1999)
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Trisomy 18
$10.95
Trisomy 18 - A Handbook for Families
By Stenson et al 1992 (copyright 1999)
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Trisomy 18
$14.95
Care of the Infant and Child with Trisomy 18 or Trisomy 13
By Ann M. Barnes, R.N. and John C. Carey, M.D. 2008
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Trisomy 18
$10.00
Care of the Infant and Child with Trisomy 18 or Trisomy 13 (E-Book)
By Ann M. Barnes, R.N. and John C. Carey, M.D. 2011
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Send checks for the above
purchases to:

SOFT c/o Barb Van Herreweghe
2982 South Union St
Rochester, NY 14624