NEW! Discussion Forum

Common Problems of Babies with Trisomy 18 or 13

Trisomy 18 Facts

Trisomy 13 Facts

Before selecting any of the books, please click on the appropriate button below for shipping charges.

Canada and Mexico orders - $2 per item

International orders - $4 per item

Introduction to trisomy 18
Explains chromosomes, diagnosis, characteristics of Edwards' syndrome and addresses parent questions.
by Stetson et al 1993, (updated 1998)
Cost: $10.95

Introduction to trisomy 13
Explains chromosomes, diagnosis, characteristics of Patau's syndrome and addresses parent questions.
by Stetson et al 1992 (updated 1998)
Cost: $10.95

Care of the Infant and Child with Trisomy 18 or 13. Medical Problems, Reported Treatments and Milestones
A continuum of the information in the above guidebooks. Moves beyond diagnosis to living with a child with trisomy 18 or 13. Contains Growth Charts, Developmental Milestones, Surgery and many daily care issues pertaining to these children.
by Ann M. Barnes, R.N. and John C. Carey, M.D. 1996
Cost: $7.00

Softly Written, Softly Spoken
The poetry book compiled by our own John Carey!
Cost: $6.00

The SOFT Times newsletter is mailed to active SOFT USA members  four times per year.  The newsletter contains family letters, pictures, helpful suggestions, professional input, SOFT conference information and more.  It is a wonderful source of information and contact for every SOFT member

The Support Organization For Trisomy 18, 13, and Related Disorders brochure is an introduction to SOFT that is especially beneficial to new parents.

A Prenatal Diagnosis brochure will soon be available.

Useful Links

Living with Trisomy 13
A support website for families of children with Trisomy 13.
www.livingwithtrisomy13.org

My Forever Child
Keepsake items to memorialize your child
http://www.myforeverchild.com

Noah's Never Ending Rainbow
The mission of Noah's Never Ending Rainbow, a 501(c)(3) non-profit organization, is to educate, advocate, raise public awareness, promote strategic alliances and assistance families who have children with Trisomy and related chromosome disorders.
www.noahsneverendingrainbow.org

SHS Nutrition
This site has been designed by you for you to help you understand more about Advanced Medical Nutrition and its related conditions. As a Healthcare Professional, Patient, Parent or Carer you can use this site to search through our extensive range of articles, references, clinical studies and product information on Advanced Medical Nutritional Therapies.
http://www.shs-nutrition.com/conditions/

Rowantree Foundation
The Rowantree Foundation's mission is to provide ongoing support and resources for families who are coping with the devastating loss of a much loved child by by offering our Community Support Forum Program, Sweetest Keepsakes Photo Retouching Program, and providing education and awareness opportunities for families dealing with the loss of a child.  We incorporate and expand upon traditional grief and bereavement support methods; bringing our focus toward rebuilding the lives that have been fractured by the loss of a precious child.
http://www.rowantreefoundation.org