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SOFT welcomes families who are expecting or who have had a baby with a related chromosomal disorder. These disorders are usually more rare than trisomy 18 or 13 and can have many variations of symptoms from little or no apparent problem to profound mental and/or physical problems. When requested, SOFT tries to find a match from its active membership families but there may only be only a few, if any members, with a specific related disorder in the SOFT database. SOFT does not have educational literature for related disorders but following this page, lists other resources that may be of help. Related disorders can occur in any chromosome and may have one or more of the following descriptions: mosaic, monosomy, deletion, partial trisomy, translocation,
ring, tetrasomy, duplication, inversion, isochrome, triploidy,
and trisomy of chromosomes other than trisomy 18 or 13 SOFT MEMBER CONTACTS
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Chromosome 1 Charlene Jurysta
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Chromosome 4 Christine Kleimola
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Chromosome 6 Lucille Rogers |
Chromosome 8 Judy Miller Jennifer Wojtkiewicz
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Chromosome 9 Laurie Rosenfeld
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Chromosome 13 ThereseAnn
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Chromosome 15 Dan & Betty Hane
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Chromosome 16 Karen Lange |
Chromosome 18 The Chromosome 18 Registry and Research Society
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Chromosome 19 Reatha Lyda |
Chromosome 22 Stephanie St Pierre
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President's Page SOFT Member contacts for T18, T13, and specific chromosome disorders Other Organizations/Contacts for Chromosome Disorders Helpful Resource Links for families of a child with any disorder |
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All Rights Reserved. Copyright 2006.