Support Organization for Trisomy 18, 13 and Related Disorders

 


St. Louis Gateway Arch

26th Annual International Conference

Meet Me in St. Louis

July 18 through July 22, 2012

Click for more information


Submit Your Photos to the Annual 
Kari Holladay Slide Show

To submit your pictures to get in the video montage
(Slide Presentation) Click Here

Deadline: May 15


Balloon Release Request Form
for Non-Attendees

Joey Watson Fund Application 
deadline May 30


~ Professional Viewpoint: Journal Club ~

Keyword:  trisomy

Professional Viewpoint: Journal Club presents a series of articles concerning children with a trisomy diagnosis.   These are written by John C. Carey, MD, MPH, Medical Advisor to SOFT.   These are printed in the SOFT Newsletter and are offered here for your information.  More recent articles are posted first.

Cardiac Surgery in Patients with Trisomy 18

Changes in Prevalence and Outcome for Trisomies 13 and 18

Ethical Rounds: An infant with trisomy 18 and a ventricular septal defect

Guidelines for Care in Infants and Children with Trisomy 18 and 13 Syndromes

What is meant by a “rare” chromosome disorder?

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SOFT Auction

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Trisomy 13
$10.95
Trisomy 13 - A Handbook for Families
by Stenson et al 1992 (copyright 1999)
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Trisomy 18
$10.95
Trisomy 18 - A Handbook for Families
By Stenson et al 1992 (copyright 1999)
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Trisomy 18
$14.95
Care of the Infant and Child with Trisomy 18 or Trisomy 13
By Ann M. Barnes, R.N. and John C. Carey, M.D. 2008
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Trisomy 18
$10.00
Care of the Infant and Child with Trisomy 18 or Trisomy 13 (E-Book)
By Ann M. Barnes, R.N. and John C. Carey, M.D. 2011
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Send checks for the above
purchases to:

SOFT c/o Barb Van Herreweghe
2982 South Union St
Rochester, NY 14624