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The following are listed for information and are not an endorsemant of any group

Chromosome 3 Registy  
Website:   http://members.cox.net/chromosome3/index.htm
Cheryl Cepek

4P- Support Group  
Website:   www.4p-supportgroup.org
Wolf-Hirschhorn Syndrome, Deletion 4P, A Guidebook for Families , Schaefer et al,  1996
University of Nebraska, Myer Rehabilitation Institute
Christine Kleimola, SOFT contact for chromosome 4, initiated and helped to write this book.

Trisomy 8
Information Guide to Trisomy 8, A Parents Perspective, Wojtkiewicz, 1999
Jennifer Wojtkiewicz, SOFT contact for chromosome 8, authored and printed this pamphlet.

Trisomy 9 (9TIPS) International Parent Support Group
Alice Todd
4027 E. Piedmont Ave., Highland, CA 92346
Phone: (909) 862-4470    
Email:  atoddna@sprynet.com

Trisomy 13
A support website for families of children with Trisomy 13.
Website: www.livingwithtrisomy13.org
ThereseAnn
15802 Springdale St.. #68
Huntington Beach, CA  92649
Email: info@LivingWithTrisomy13.org

Trisomy 15
Betty Hane
1506 McCully Road
Pittsburgh, PA  15234-1939
Phone: (412)207-0676    
Email:  USERHA8039@AOL.COM

International 11;22 Translocation Network 
Website:  http://www.nt.net/~a815/1122main.htm
Email:   a815@c22c.org   

Disorders of Chromosome 16 Foundation  (DOC16)
Website:  http://www.trisomy16.org
Karen Lange
331 Haddon Circle, Vernon Hills, IL  60061
Phone: (847) 816-06627

The Chromosome 18 Registry and Research Society 
Website: www.chromosome18.org
Email:  jmcging@dm.net
7155 Oak Ridge Drive, San Antonio, TX 78229
Phone: (210) 657-4968

Chromosome 22 Central
Website:  http://www.nt.net/~a815/chr22.htm
Stephanie St. Pierre 232 Kent Ave
Timmons, Ontario, Canada P4N 3C3
Phone:  (705) 268-3099 
Email:  a815@ntl.sympatico.ca  or 
Email:  mum2-1@hotmail.com

July 24 through Sunday July 27, 2008
Denver, Colorado

To submit your pictures to get in the video montage (Slide Presentation),
click here.

Deadline: June 16, 2008!

SOFT for SALE

President's Page
Letter as written for The SOFT Times newsletter from Barb VanHerreweghe, SOFT President. 
check out the newsletter

SOFT Member contacts for T18, T13,  and specific chromosome disorders

Other Organizations/Contacts for Chromosome Disorders

Helpful Resource Links for families of a child with any disorder



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