Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) is a nonprofit volunteer organization offering support for parents who have had or are expecting a child with a chromosome disorder (especially Trisomy 18, and Trisomy 13), and education to families and professionals interested in the care of these children.
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Dear SOFT families:

Wow, the conference is already over but what memories we will all share forever!  The conference committee did a wonderful job.  The clinics were helpful to the families that attended.  The workshops were very informative and some were a little different than were presented before.  Hopefully, everyone learned something new.  Later in the newsletter you will see some highlights of some of the workshops that were presented.  I hope those that were not able to attend are able to get needed information for their family.  The best part of the conference is always the picnic.  It was a beautiful day. 

Good friends, good food and lots of fun.  The balloon release was wonderful and some of our SOFT friends at home were able to watch before the webcam went down.  Check out the webpage and the SOFT Facebook page to see all the great pictures of the wonderful gatherings we had for the whole week. 

Now onto next year!  South Dakota here we come!  Kim and Gloria Jorgenson have taken the oath of crazy to make us all feel like we are at home in South Dakota.  We are looking at the week of July 14th in 2010 so mark your calendars now.  Plan to come early and enjoy the sights of the area.  Kim and Gloria will be sharing the information soon.

The next year we will be back in Chicago with the triple crazy crew for asking us back for the third time!  See what it takes to throw a SOFT conference?  We thank each of the future sites for stepping up and inviting us all to your city.  You are the ones that allow us to continue to meet and share with each year.

This year Joey Watson memorial fund was able to help over 10 families attend the conference.  We had many new and old families attending this year.

Check out the newsletter later on to see the pictures of the new baby born to Dana and Corey from Noah’s Never Ending Rainbow.  Congratulations on your new bundle of joy.  Thanks also for helping us fund the picnic this year.

There were so many people that helped make this year’s conference a success. 

The Board talked about many changes to the website.  Keep watching to make sure you don’t miss anything.

To all of you, have a healthy rest of the summer and bless each of your families.

SOFTly,
Barb, Dave, Stacy and Andy
The VanHerreweghes