Support Organization for Trisomy 18, 13 and Related Disorders

My three son’s

Location: Waldoboro, Me, USA
DOB: not specified
DOD: not specified



Our story[Go To Updates]

Hello Everyone, My Name is Nicole, my husband and I have three beautiful boys whom all have Partial Trisomy 13. Our diagnosis for our two older boys came after our second son was born with a heart defect.  We have Gavin who will be 6 in November, Joshua who is 5 and our newest addition Elijah who is 1 1/2. We have faced many struggles with our boy, ups and downs, sad and happy, every emotion I think someone can experience we have felt. I am only writing a quick paragraph for now because my life is so very busy with the boys, but as I get more time I would like to write down all three of their stories. I would really also like to talk with other families who have chidren with Partial Trisomy 13, as far as we have been told there are no other children in the state of Maine with this condition or even a full trisomy.  I can be reached via email at nicole.wallace@maine.edu

Updates [view all]

No updates have been posted.

Donate to Soft

SOFT Auction

View Cart
Trisomy 13
$10.95
Trisomy 13 - A Handbook for Families
by Stenson et al 1992 (copyright 1999)
View Details
Trisomy 18
$10.95
Trisomy 18 - A Handbook for Families
By Stenson et al 1992 (copyright 1999)
View Details
Trisomy 18
$14.95
Care of the Infant and Child with Trisomy 18 or Trisomy 13
By Ann M. Barnes, R.N. and John C. Carey, M.D. 2008
View Details
Trisomy 18
$10.00
Care of the Infant and Child with Trisomy 18 or Trisomy 13 (E-Book)
By Ann M. Barnes, R.N. and John C. Carey, M.D. 2011
View Details

Pay ONLINE by clicking on the
'add to cart' in red!!!




Send checks for the above
purchases to:

SOFT c/o Barb Van Herreweghe
2982 South Union St
Rochester, NY 14624