Hello, just to tell you a little about our story.  We found out prenataly that our son Gabriel has Trisomy 18 and Truncus Arteriosus.  We had a very trying pregnancy, fighting and battling with some Dr’s that we would keep Gabriel and not abort.  We demanded and echocardiogram when he was born and he now had a PDA, PFO, Large VSD, and Displastic valves.  He spent 8 days in the N.I.C.U and then 3 weeks in a Children’s home, to teach us how to take care of him at home on oxygen. We were sent home with Gabriel on 1/64 of a liter of O2.  We have a follow up appointment with the cardiology team the end of December.  However, on Thanksgiving morning, Gabe was in heart failure.  We rushed him to the hospital, where we fight for a pulmonary band to help save his life.  He will have surgery on 12/2/2011.  We have prayed for Gabe’s arrival and believed that God would honor our faith to him.  Our dreams came true and now we pray that God would be with us and the Dr’s performing the surgery. Gabe’s life has brought our family even closer to God.  What his little life has taught us thus far.  What an amazing little fighter he is. He really has a will to live.  We pray that through this pregnancy and birth, the eyes of some dr’s  would be open and that they would see these little babies differently.  They told us from the beginning that Gabe was going to die.  None of them expected him to be here this long. We said ALL along, “Let’s let Gabe show us what he will do.”  That’s all we wanted all along.  Don’t shut the door on on his life, God chooses that, not us. 

I can be reached at shellee0777@yahoo.com if  you would like to talk about our precious babies.