Support Organization for Trisomy 18, 13 and Related Disorders

Families

Share your story with other families.

Our Families section allows you to either create a new family page on our website or link to a page you have somewhere else.  If you create a new family page here, you will also be able to add updates to it anytime you like.  Our family pages allow you to upload photos, link to your Facebook page, and allow others to contact you without sharing your actual email address.  Others may also leave comments on any updates that you post.

  1. Create an account or login if you’ve already created an account.
  2. In the grey bar that appears above, click on Add New -> Child Page
  3. If you want to edit an existing page, find the page below, click on it, and then click Edit Child Page in the grey bar.
Name Diagnosis City, State, Country DOB DOD
Lane Hauber Full Trisomy 18 Springtown, Texas, USA 12/08/2008
Taylor Christine Norris Trisomy 18 fredericksburg, texas, us 04/19/1993
JORDAN R PERLEBERG TRISOMY 18 EAST BETHEL, MN, USA 05/17/1998 10/11/2009
Rebekah Budd Full Trisomy 18 US 4/21/2009
Ryan William Steele Mosaic Trisomy 18 VIRGINIA BEACH, VA, USA 12/23/99
Isaac’s Story, 11 peaceful days Full Trisomy 18, diagnosis after birth, prenatal diagnosis was missed. Woodbridge, VA, USA
Andrea Gayle Eakle Trisomy 18 with large VSD wellington, ohio, usa Dec. 5, 2011 Jan. 17, 2012
Madeline Rose Desmond Trisomy 18 with large VSD Hyde Park, MA, USA November 15, 2011 January 3, 2012
Jaycee Rapunzel Baugh Full trisomy 13 Brownsburg, IN, USA 12/31/11 6:56 am 12/31/11 8:10 am
Isabella Josephine Wolfe Trisomy 13 with Holoprosencephaly Timonium, MD, USA May 23, 2011 May 24, 2011
Gabriel Aubele Trisomy 18 with Large VSD new kensington, pa, usa 09/19/2011
My three son’s Partial Trisomy 13 Waldoboro, Me, USA
Ji’Ezra Seymore Full Trisomy 13 Syracuse, New York, United States 6/01/2003
Evangeline Wilson Trisomy 18 Niceville, FL, USA October 11, 2011 October 11, 2011
Stacy Lynn VanHerreweghe Trisomy 18 Rochester, NY, USA 5/21/1981
Natasha Chipasha Bulaya PROVIDENCE, Rhode Island, USA
Sophia Moelk T18 Mosiac Edwardsville, IL, US 03/18/11
Logan Barrett T18 Ponte Vedra, FL, US 06/06/1990 09/27/1997
Ana Kos T18 Varazdin, Croatia 02.06.2010
Bryson Nault T13 Summerville, SC, US June 9, 2006 June 9, 2006 February 24, 2010
Mieko Johnson T18 St. Paul, MN, US 3/9/04 7/11/08
Simon Crosier T18 Webster Groves, MO, US 09/07/2010
Lorenzo Tamez T13 Edinburg , TX, US 07/22/07
Phillip Serb Trisomy 9 mosaic morton grove, IL, US 09/23/07
Kayli Whistler T18 Full Cary, IL, US 4-21-09
Luke Fierro T18 US 10-28-11 10-20-11
Akaiya Davis T18 US 9/4/02
Vanessa & Jacob Jennings Chr 14q32.33 trisomy mosaic US 11/30/2001 04/21/2006
Aaron Peterson T18 US 6/13/2010
Isabel Hernandez T13 Mosaic US 12/14/10
Levi Giles T13 US 08-12-2003 10-30-2003
Amadeo Jade DeStefano T18 US 12/7/10 1/21/11
Taylor Munn T18 CA july 18, 1998 july 18, 1998
Kellie Llanos Mosaic T13 US 11-20-04 04-13-10
Morgan McCormick T18 US 07-14-q1997
Mara Bree T13 US 11-8-10 11-13-10
Kaylee Danson T9M US 10/23/2009 02/03/2010
Eugenio Marcos Montalvo Full Trisomy 13 US 9/20/2010 10/25/2010
Gianna Caeli Henninger T18 US due 12/12/2010
Brady McClintock T13 US 9/16/2010 9/16/2010
Dalton Martini T13 US 12-30-2003 10-24-2008
eva hernandez T18 US 09/10/2010
Neosha Andrews T18 US 08-16-2010 9-11-2010
Erin Jorgenson T18 US 11/4/94 5/4/95
Mia Stokley T13 US 05/20/2001 07/15/2006
Evy Kristine T18 04.15.2010 04.18.2010
Maggi Blair Trisomy 9 Mosaic US April 18, 2005
Grace Anne Long Partial T13 US 02/07/2008
Kameron Wolpert T18 US 5/8/97
Rebekah Budd Full T-18 US 4/21/2009
Aralyn Faith Walden T18 US July 26, 2010
Alyssa Grace Shihadeh T18 US 7/15/2008
Kimberly Miller T13 US 10/14/87
Arianna Snell Trisomy 13 US 06/19/2006
Samuel Jackson Mosaic T-13 US 11/28/1998
Demetria Jackson T18-partial US 08/15/2006
Daniel Raymond Wickman T18 US April 15, 2010 April 30, 2010
Annie Farlow T13 CA 05/25/05 08/12/05
Braelyn Brown T18 US 05-27-2010 06-10-2010
Elijah Grinsell T13 US April 25, 2010 April 25, 2010
Noah Thomas Campbell Partial Trisomy 2p+ US 5-14-2001 5-14-2001
David Whittenton T13 US 10/27/2006 10/27/2006
Jolynn Ryan T13 US 09/05/2000
Samantha Martin Tetrasomy 18p CA, US June 4, 1993 December 3, 2006
Lillian Brown T13 US 9-27-08 11-23-08
Diana Victoria Rodriguez T13 US 07/21/2007 8/7/2007
Devon Victor T13 US 06/15/95
Isaac Quinn Miller T18 Woodbridge, VA, US 02/19/2001 03/02/2001
Michael Scholten T13 US 4-28-10 4-28-10
Grace Smith T13 US 6-29-2006 7-1-2006
Fiona McElliott T18 US 07/08/2002
Natalia Marie T13 US August 25, 2000
Nicholas Wright T13 Hudson, IL, US April 6, 1995

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Trisomy 13
$10.95
Trisomy 13 - A Handbook for Families
by Stenson et al 1992 (copyright 1999)
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Trisomy 18
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Trisomy 18 - A Handbook for Families
By Stenson et al 1992 (copyright 1999)
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Trisomy 18
$14.95
Care of the Infant and Child with Trisomy 18 or Trisomy 13
By Ann M. Barnes, R.N. and John C. Carey, M.D. 2008
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Rochester, NY 14624