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SOFT has established this resource to help friends and families learn more about Trisomy. We hope you find these materials helpful. Take a look at the Menu to the left and click on your choice for more information. If you would like to place an order, just contact the SOFT Distribution Center. Only books are available from the distribution center. |
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Place a Book Order
All books are $10.95 (plus postage and handling).
Canada and Mexico Orders add $2
International add $4Checks should be made payable to SOFT. For information about obtaining these publications, contact:
S.O.F.T. Distribution Center
C/O Barb VanHerreweghe
2982 So. Union St.
Rochester, NY 14624
Phone:1-800-716-SOFT (7638)
E-mail: barbsoft@rochester.rr.com |
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Cost: Included with Membership |
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SOFT Times is published 4 to 6 times annually. The SOFT Times combines SOFT information, professional input and family letters. It is filled with pictures and stories, poems, and memories of our children. Informative articles for parents are included. The SOFT Times provides a forum for families to share with others. The SOFT Times is included with your SOFT membership. |
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Trisomy 18: A Guidebook for Families
(Stetson et al, ©1993)
Cost: $10.95
Introduction to trisomy 18
Explains chromosomes, diagnosis, characteristics of Edwards' syndrome and addresses parent questions. |
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Trisomy 13: A Guidebook for Families
(Stetson et al, ©1992)
Cost: $10.95
Introduction to trisomy 13
Explains chromosomes, diagnosis, characteristics of Patau's syndrome and addresses parent questions. |
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Care of The Infant and Child with Trisomy 18 or 13:
Medical Problems, Reported Treatments and Milestones
(Barnes, Carey,©1996)
Cost: $7.00
A continuum of the information in the above guidebooks. Moves beyond diagnosis to living with a child with trisomy 18 or 13. Contains Growth Charts, Developmental Milestones, Surgery Data and many daily care issues pertaining to these children.
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