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| SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing. SOFT is committed to respect a family's personal decision - in alliance with a parent / professional partnership. |
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- Annual Family and Medical Conference
- Educational Literature on Website
- Helpful Resources and Support Groups on Website
- Lists Non USA Contacts on Website
- Related Disorder Contacts and Resources on Website
- The SOFT Times Newsletter with Membership
- Surgery Data by Request
- U.S. State Chapters on Website
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To request information about:
SOFT contact
(800) 716-SOFT(7638)
barbsoft@rochester.rr.com
Surgery contact
fbarnes@nc.rr.com
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